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  FETAL ALCOHOL SPECTRUM DISORDER (FASD)
 

The Issue

Drinking alcohol during pregnancy can seriously harm an unborn baby. Each year in Canada, it is estimated that nine babies in every 1,000 are born with Fetal Alcohol Spectrum Disorder (FASD). The birth defects and developmental disabilities that result from FASD are preventable by avoiding alcohol during pregnancy.


Background

Fetal Alcohol Spectrum Disorder (FASD) is an umbrella term used to describe the range of disabilities and diagnoses that result from drinking alcohol during pregnancy. The impact and effects of FASD vary. Specific birth defects and the degree of the disability can depend on how much alcohol was drunk, how often and when during the pregnancy; they can also depend on the state of health of the pregnant woman. No amount or type of alcohol during pregnancy is considered safe.

It is estimated that in Canada alone, more than 3,000 babies a year are born with FASD, and about 300,000 people are currently living with it. Research suggests that the occurrence of FASD is significantly greater in Aboriginal populations, and in rural, remote and northern communities. Prevention, identification and intervention efforts are key to improving this situation.



A large number of pregnancies are unplanned, meaning that a large number of women in the early stages of their pregnancies - not knowing they are pregnant - may use alcohol and unknowingly cause damage.

If you suspect that a family member may have FASD, talk to your doctor about having him/her diagnosed. An early diagnosis can lead to interventions which will minimize the impact of FASD.

FASD is a national public health, education, economic and social concern as those affected suffer a lifelong disability and may need lifelong support. A great deal has been learned about the best way to prevent future births affected by alcohol and how to help those who live with FASD


Health Effects of FASD

Those who live with FASD may have mild to very severe problems with their health. They may have delays in their development, intellectual problems and problems in their social lives.

Examples of these include:

  • learning disabilities, particularly in mathematical concepts;
  • difficulty understanding the consequences of their actions;
  • depression;
  • obsessive-compulsive disorder;
  • physical disabilities such as kidney and internal organ problems; and
  • skeletal abnormalities such as facial deformities.

There is no cure for FASD. People live with FASD for their entire lives, so early intervention is key to minimizing the disabilities associated with it.

Other effects of FASD

When they hear about the impact of drinking alcohol during pregnancy, many parents or care-givers wonder what to look for, especially if their family members have behavioural or medical problems that don't respond to treatment. Those with FASD may have difficulties such as:

  • handling money or telling time;
  • thinking things through and reasoning;
  • learning from past experiences and not repeating mistakes;
  • remembering things like appointments; or
  • interacting with other people and getting along with others in a socially appropriate manner; or
  • dealing with everyday tasks such as holding a job, buying food or paying rent.

People with FASD may need life-long support to deal with these difficulties.          

Secondary disabilities     

Diagnosis, particularly an early diagnosis, and an effective management plan for on-going supports can help prevent people with FASD from developing secondary disabilities, such as:

  • mental health problems (like depression or obsessive-compulsive disorder);
  • dropping out of, or disrupting, school;
  • trouble with the law;
  • chronic unemployment;
  • alcohol and drug problems; and
  • homelessness.

If FASD is suspected, it is important that a trained doctor do a medical diagnosis to rule out other medical conditions that might be treatable. Diagnosis also involves a team of professionals who assess the psychological, speech and everyday functioning of the individual. Diagnosis and early intervention and support can help people with FASD lead more productive lives. Despite their disabilities, people with FASD have many positive qualities and can enjoy very successful lives.

Minimizing Your Risk

FASD can be prevented by following these steps.

  • More than 50 per cent of pregnancies are thought to be unplanned, and, in the early stages, most women do not know that they are pregnant. If you are pregnant, or planning to become pregnant in the near future, do not drink alcohol. No amount or type of alcohol is considered safe.
  • If you have sex and are not using birth control, avoid drinking alcohol.
  • If you are worried about your alcohol use, talk to your doctor, community health nurse, midwife or healthcare provider. Your local public health unit, health centre, Friendship Centre or provincial/territorial Ministry of Health can all provide you with help, information and advice.

In preventing FASD and improving outcomes for those who live with it, no one single organization, community group or government can work alone. It is a complex disability that requires a strong commitment to working together.

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